• JolynnToma_FlexLogo_Black
  • Grey Facebook Icon
  • Grey Pinterest Icon
  • Grey Instagram Icon
  • Home

  • About Jolynn

  • Services

  • FLEX

  • Blog

  • Testimonials

  • Contact

  • More

    JOLYNN TOMA

    • JolynnToma_FlexLogo_Black
    • White Facebook Icon
    • White Pinterest Icon
    • White Instagram Icon

    Central IL

     

    jolynntoma@gmail.com

    © 2018 by Jolynn Toma

    pictures: AMHphoto

     

    Personal Trainer ::  Nutrition Specialist

    Registered Nurse

    Cure for Carrick

    July 8, 2016

     

    **Warning: The images you are about to see are graphic.**

     

    I post about positive things a lot. That's how I try to live my life on a day to day basis.

     

    But today, I want to talk about a serious matter.

     

    A friend of mine is struggling. Her son was born with a rare disease that no one seems to know how to cure.

     

    She's traveled everywhere in Illinois, as far north as Wisconsin and as far south as possible. They've ran every test imaginable and they've made 0 progress.

     

    Meet Carrick.

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

    He's 2.5 years old.

     

    From that picture, it doesn't look like much but take a closer look.

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

    This is him.

     

    This is the way his entire body looks underneath clothing, and he has dealt with it since day one.

     

     

     

     

     

     

     

     

     

     

     

     

     

    His mother and I have known each other for a few years, and I met him when he was a newborn - back when Dr's thought his condition was due to a simple milk allergy.

     

    Two and a half years later and he can't have dairy, gluten, soy, nuts, sesame, chickpeas.. the list goes on. You'd think that would be the cure.

     

    It's not.

     

    Those are only a few things of many that trigger his body to attack itself.

     

     

     

     

     

     

     

     

     

     

     

     

     

    He has to wear footie pajamas or full pants/long sleeves/and socks at all times because the minute his skin is exposed, he itches it until he bleeds. This means not playing outside on most summer days because he'll easily get over heated.

     

    He has to take bleach baths to ensure he doesn't get an entire body infection. Can you imagine being the one to sit him down into that? Torture.

     

    He's been on a steroid for months. It seems to be the only solution to provide a minimal amount of relief right now.

     

    Why am I talking to all of you about this?

     

    To help them find a cure. The internet is such a powerful tool, when used in the right manner, and I'm hoping someone, somewhere has gone through a similar situation and can provide answers for them.

     

    On July 19, they are leaving for a 12 day trip to see a specialist in Colorado. They'll spend all day and night each day running tests on him.

     

    They have insurance but unfortunately the particular company they have has been known not to make their payments to the facility they're attending so they have a huge lump sum to pay out of pocket. (estimated around $30,000 - including an $8,000 deposit to simply get him the appointment)

     

    There is a Go Fund Me page set up for them.

     

    If you feel able to help at all, please do so. I know every dollar is a blessing to them.

     

    And they're also selling t-shirts.

     

    I plan on making food for their road trip. Like I said, he's allergic to just about everything so no packaged goods, no fast food, no eating at a restaurant because you never know exactly what they cook things in.

     

    So if you have any suggestions on a recipe you think he might be able to eat in the car or at their hotel (they have a full kitchen) please share them.

     

    Feel free to share this post. Share the Go Fund Me page. Share the message.

     

    #cureforcarrick

     

    xoxo

     

    Please reload

    Blog

    Featured Posts

    I'm busy working on my blog posts. Watch this space!

    Please reload

    Archive

    May 2018 (1)

    February 2018 (1)

    August 2017 (2)

    June 2017 (2)

    March 2017 (1)

    February 2017 (1)

    January 2017 (2)

    November 2016 (1)

    October 2016 (1)

    August 2016 (1)

    July 2016 (6)

    May 2016 (2)

    April 2016 (1)

    Please reload

    Follow Me
    • Grey Facebook Icon
    • Grey Twitter Icon
    • Grey Instagram Icon
    • Grey Pinterest Icon